We decided to apply for our lovely twins in their siblings' school, for preschool class, but we faced something we've never thought it would happen from educated people. The minute the school manager knew that he has a medical condition and that he has a valve in his head connecting a tube from his brain to his abdominal, she got that face we know when people hear about his condition that says " Is he retarded?" then she decided that he could not be admitted to the school. Why? That's it, the school can't accept such a condition!!! Why? He's a totally normal boy! No sorry! My husband tried a lot with her till he convinced her to get reports from both his NS and Pediatric confirming that he's normal and doesn't need any special treatment. And she decided that she will transfer his file to the French manager, it's a french system school. And we agreed.
We got all the reports needed and came back to a meeting with the french manager, he was a real gentleman and caring person, he begun with " here's my signature I accept him but i only want to know more of his medical condition." The difference between his way of thinking and talking and egyptians ways are sooooo different. He read the reports, he even talked to his pediatrician over the phone, he was so calm and nice.
When he got into the class i met his teacher and i get a long talk with her regarding his condition, and
she re-asked all the questions i already answered. But she also got that face of " is he retarded?" But she asked it in a different way. She asked if he will ever need a shadow teacher. And I told her No. The last day in school, she told me that he is a very lovely child, he's so smart and caring. And she told me , and I felt it was a reply to herself " don't let anyone tells you that your son has any comprehensive problem, he is a totally normal boy thank God."
Now i'm thinking of enrolling them in sports trainings, i started to talk with some trainer, and as usual when they hear about his condition they got this face of " is he retarded?" And sometimes they even ask it directly, and then they get afraid of dealing with him. They say it's a responsibility we can not bear!
I have to explain his condition to every teacher he will ever get, every trainer. Every person who will ever interact with him all through his life.
All I'm thinking now of is, if me a grown up can't convince well educated grown ups that my son has a medical condition but he is not retarded nor need a special treatment, how would he be able to deal with it his whole life?
People always assume that having a brain problem means retarded or need special treatment. But his condition, Thank God, is not, he only needs that people around him knows how to interact with him in a safer way.
I know this blog is not funny, but life isn't always.
No comments:
Post a Comment